Monday, September 7, 2009

HOSPITAL SUCKAGE UPDATE


So an update of Mum and her hospital saga.

With some fantastic support from friends, both on the internet and “in real life” Anna Bligh has requested a meeting to discuss my letter. Fantastic step in the right direction and very impressive. I will let you know how that goes.


The other positive step was, after making a not harsh, but strongly worded phone call to the surgeon, we were granted a meeting that afternoon with the doctor, the physio, the Occupational therapist and social worker. Mum, probably got no further than hearing she would more than likely have to give up her house, which has devastated her, but my brother and I got a lot of answers to a lot of questions.

Like what’s next. Like what are Mum’s care options. Like where we go to from here.

The system is still having major suckage issues.


Like how prior to her operation, the nurse wanted to double check that she definitely didn’t want a blood transfusion should she need one during surgery. Um, no Mum never said that. How in the fuck do you get something like so wrong? What if we weren’t there with her? What if someone couldn’t respond?

Like why mum was being given anti-depressants that included a sleeping table component (which wasn’t made known to us) first thing in the morning, which in turn made her very sleepy all day and basically, off her face.


When I came to visit her on Saturday morning, she was both sleepy and disorientated. She said the social worker had been to visit the day before but she was still confused and didn’t take a lot of it in. No fucking wonder. She was off her head.


After asking the nurse about this, they agreed that the doctor should have prescribed them for night time. HELLO geniuses.

In our previous family meeting, the doctor had advised there would be no reason to do an invasive colonoscopy after getting all the test results needed from the brain tumour.

But then, I turn up Saturday, Colonoscopy prep written on her board. No information regarding this was or has been passed on. Keeping in mind we only just found out her stent has been put in tonight. I imagine this is fairly major. We (my brother and I) have had no information relating to this matter.
Basically jelly and soup since Saturday morning until Sunday then nil by mouth until tomorrow. Tomorrow.

Today they took her from the ward at lunch time but didn’t do the colonoscopy and the stent until 4pm. 4 hours whilst 10 people went in before her. When Mum had the “gall” to ask why she was being overlooked, she was reduced to tears when a nurse said to her, “You’re lucky you don’t have to pay for this Mrs Clarke. Do you have any idea how much this equipment costs?” I Shit you not.

Mum then, in tears, scrambled to tell the nurse she will make a donation. Needless to say, I cannot begin to tell you my anger right now. Um hello bitchface, she did pay for this equipment. It’s called 50 years of working and paying taxes.


As do I. As does her son.


When I spoke to her an hour ago, she still hadn’t eaten nor was she allowed to until tomorrow morning. Not even a cup of tea.

So when I do get to see Anna Bligh, I’m going to remind her about her boss’s promise. It went like this - if the states couldn’t fix the health system by mid 2009, he would. So come on K Rudd. As you said, the buck stops with you. Fix this shambles.

10 comments:

Bianca said...

OMG I dont even know what to say. How do they get away with stuff like this?

I am very happy to hear about your meeting with Anna Bligh, at least they seem to take you seriously and you can be a voice for a lot of people out there. Good luck!

cate swannell said...

omg bern this shit is just intolerable. time to put this post in front of k-rudd's twitter feed m'thinking. makes me so angry. all of it.

MrsDesperate said...

This is indescribable, but sadly, so common and it has happened to members of my family too. They never want to make a fuss, and take so much of it lying down (pun not intended). As you say, if we weren't there to make a fuss, who would? So glad you are taking a stand. Well done on getting a meeting with Anna Bligh. If you want to get media coverage, I have some contacts, so let me know.
Just the other day, I found out my elderly uncle with alzheimers is having his meals whisked away untouched each day. He is physically unable to eat or drink them - needs to be fed, but there is no one to feed him. He is unable to speak out to tell them he is hungry and wants to eat. Now my elderly Dad and a few other rellies have a roster where they go in to feed him and give him a drink. The staff just don't seem to care. Good luck.

Belle (Ashbergsmum) said...

I am as angry as you are right now Bern!!! How dare that nurse say “You’re lucky you don’t have to pay for this Mrs Clarke. Do you have any idea how much this equipment costs?" Words escape me right now. Sent it to K Rudd for sure Cate!!! Lets all do it.

Aussie-waffler said...

:( Do you feel an unseen weight behind you Bern ? That would be all of us pushing together and getting behind you 100%. x

Fiona Dixon said...

I hope your meeting goes well with Anna Bligh. You are doing a great thingby meeting with her. Maybe you should send a copy of your letter to Mr Rudd too.
My experiences have been quite good although I was in maternity and neonatal intensive care units with my Daughter which we found positive although out transfer back to a country hospital was a shock after having Sydney
hospital resources.
My Mum has also spent a bit of time in hospital with kidney issues and also had a kidney transplant. It was also quite positive but we always had to go out of her local area for treatment as there were no doctors or nurses who were trained in renal area of medicine.

I wish your Mum all the love and best wishes in the world. I also wish you, your brother and your families much love.
Its not easy watching your Mum in these sorts of situations and when they don't seem to be getting the care they deserve. Its an experience I watched my Mum go through in her 40's and into her 50's and its not easy.

With Airlie my baby born 3months early I learnt that I had to be her advocate and I suppose that can take form for your Mum too. Never be afraid to stand up for what you believe she should recieve. The nurse should have a good talking to.. How rude!

Cate Bolt said...

Let me just start this by saying that I don't have what it takes to be a nurse... but I'm also not nursing.

Honestly, if you can't nurse and be decent and pleasant to people, go flip burgers.

emjaystar said...

It breaks my heart to hear of this. I have been a lucky one and have not had any personal experiences with the 'Public Hospital System'.Yes I have private health cover. But I understand that not everyone can. Like you said your mother has already paid for her treatment in the many years of tax she has paid. I hope you get somewhere with Anna when you meet with her. But what I really pray for is that the remaining time your mother has to spend in hospital or when dealing with any medical professional, that she is treated with the utmost respect. Respect that this is, an older, fragile but still a thinking, feeling human being.

Al said...

your poor mum! i cannot believe that nurse would be SO freaking nasty! who does she think she is.... some of them are just so out of touch with what their jobs are.

I hope everything starts going to plan.

Sparkly Tiara said...

Oh my god, Bern, I am in shock as to how your mother is STILL being treated.

Does her hosptial not have a patient liaison officer or something like that? It's absolutely unacceptable.

My thoughts and prayers are still with all of you, and I am so glad you're getting your face to face meeting. Someone needs to be held accountable.